Chase the Cure Inc's Non Profit Funds are used for the greater good of the Niemann Pick C Community. We donate to other foundations and help support research and different treatment options for other interested parties in the greater NPC Community.
Chase and his family have other expenses that are not covered under his non profit. Accordingly an account in his parent's names has been established in our original home town of Lincoln, RI.
Gifts to this account are NOT tax deductible but do go directly to caring for Chase and his family. Whenever a family is dealing with a catastrophic illness expenses quickly mount with copays, time out of work, parking and in Chase's case a lot of supplements and treatment course considerations that are not able to be covered with funds from his non profit. Additionally there are several therapy aids we would love for him to have to help preserve the neurologic function he has and to work towards tapping new areas of his brain.
To Donate to this account please mail gifts to:
Coastway Credit Union
210 Front Street
Lincoln RI 02865
attn: Account 104017 c/o Ray & Shannon DiGiovanni
Immediate Need for Funding for Trappsol Cyclodextrin. Our Federal Blue Cross Plan Will NOT Pay for this Drug. Our Non Profit is not set up to collect funds for this drug. Gifts are most appreciated. 1/3/12
operation: Get him to the Geeks
Chase receives amazing care from his team in Vermont and they have managed to dedicate a lot of their limited resources to him. Becauase we are in a small area that serves a large community the doctors and those with rare conditions can't be optimally served in our present situation. His amazing and knowledgeable team is slightly limited in what they can commit to him for time becuase there are so few specialists in each specialty clinic in VT. For this reason we are beginning to add Boston Children's Hospitals Metabolic Team as his second investigational team for his Compassionate use infusions. This is not coming without significant cost to us. We are looking forward to hosting many upcoming fun family events to raise the capital we need to make sure we leave no stone unturned for Chase. We appreciate any gifts that can be given as we begin the arduous process of : "Get (ting) him to the Geeks !"