We thank you for supporting our cause and are forever touched by your prayers.
- The Reedy-DiGiovanni Family
Our small group is part of a larger community of Niemann Pick Disease sufferers. We are focusing specifically on research and treatment options for Niemann Pick C. Our Chase has the NPC1 mutation, the type shared by the majority of children and young adults with NPC. Funds raised by Chase the Cure in honor of Chase DiGiovanni will be distributed to the NNPDF and other foundations that are presenly working on INDs and organizing to bring treatments out of the labs and into the children who need them.
We are a public charity operating under an organizing document as a Non Profit Corporation in the State of Vermont, as a pending 501c (3). Deductions you make to Chase the Cure Inc via our site are tax deductible using our EIN and receipt provided at the time of your donation. We are delighted to process funds by mail too and provide you with your tax deduction letter! Please contact us at email@example.com for further information or to simply say hello, we enjoy hearing from everyone.
2/27/13 PLEASE NOTE WE ARE MOVING HIS CORP. FROM VERMONT TO RHODE ISLAND AND WILL UPDATE THIS SOON!
CTC Pledges to devote every possible resource to research and treatment of Niemann-Pick C Disease.
CTC and Chase's Family Pledge to honor the suggestions and lessons of those who have come before us and struggle with us now for the collective good.
Our family pledges to party like rock stars (with plenty of naps) each and every day with Chase.
Thanks for your interest in donating to support Niemann Pick C Research! NPC is a heartbreaking disease, the amount of time taken to currently diagnos it is staggering. The symptoms are clear, the blood test available and the treatment options underway.
Some people have asked how to donate just to help our family, we are very appreciative. Any family dealing with a chronic illness is plagued by time out of work and very strained resources. Gifts to our family are greatly appreciated, but they aren't tax deductible, please remember that. If you are still interested in helping with the day to day and some of Chase's care needs that aren't covered by health care there is an account at Coastway Credit Union under Ray DiGiovanni & Shannon Reedy (Dad and Mom.) Coastway Credit Union 210 Front Street Lincoln RI 02865